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Useful Resources for Haemoglobinopathies | Support & Guidance

Discover a wealth of useful resources tailored to patients, families, caregivers and support networks whose life is touched by Sickle Cell Disorder (SCD). This page provides a curated collection of tools, guides, and links to external organisations, designed to help those with SCD live your life.  Here we aim to provide holistic information to treat the whole person; financial, nutrition, exercise and social support for everyday life, empowering you to live your best life.

Terminology

Exercise advice for teenagers and adults living with sickle cell disorder

Priapism and what to do if you experience it

Knee exercises for teenagers and adults living with sickle cell disorder

Blood donors are my angels

Help for Children and Young Person’s with Sickle Cell Disorder

Childline | Free counselling service for kids and young people

Establishing a foundation for good nutritional status

What is was like for me growing up with SCD

Ready Steady Go – Transition: moving into adult care

Upper limb exercises for teenagers and adults living with sickle cell disorder.

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