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Useful Resources for Haemoglobinopathies | Support & Guidance

Discover a wealth of useful resources tailored to patients, families, caregivers and support networks whose life is touched by Sickle Cell Disorder (SCD). This page provides a curated collection of tools, guides, and links to external organisations, designed to help those with SCD live your life.  Here we aim to provide holistic information to treat the whole person; financial, nutrition, exercise and social support for everyday life, empowering you to live your best life.

Core (trunk) exercises for teenagers and adults living with sickle cell disorder

Ready Steady Go – Transition: moving into adult care

Being Heard – Haemoglobinopathy Coordinating Centre

Young Minds | Mental Health Charity For Children And Young People

How to manage malnutrition risks in children living with sickle cell disorder

The RHO Transition Project

What is was like for me growing up with SCD

Thalassaemia & Rare Inherited Anaemias

Living with Sickle Cell Disorder | UNHEARD

The Sickle Cell Nutrition Eatwell Guide – A foundation to support healthy eating

Hip exercises for teenagers and adults living with sickle cell disorder