Search

Useful Resources for Haemoglobinopathies | Support & Guidance

Discover a wealth of useful resources tailored to patients, families, caregivers and support networks whose life is touched by Sickle Cell Disorder (SCD). This page provides a curated collection of tools, guides, and links to external organisations, designed to help those with SCD live your life.  Here we aim to provide holistic information to treat the whole person; financial, nutrition, exercise and social support for everyday life, empowering you to live your best life.

Priapism and what to do if you experience it

Managing energy levels

John James OBE, Sickle Cell Society

The Mix Essential support for under 25s in the UK

Knee exercises for teenagers and adults living with sickle cell disorder

Thalassaemia & Rare Inherited Anaemias

Patient Public Voice (PPV) Group Application form

What is was like for me growing up with SCD

Terminology

Core (trunk) exercises for teenagers and adults living with sickle cell disorder

Childline | Free counselling service for kids and young people

YoungMinds | Mental Health Charity For Children And Young People

Powered by (opens in new window)  GDPR Cookie Compliance
Privacy Overview

This website uses cookies so that we can provide you with the best user experience possible. Cookie information is stored in your browser and performs functions such as recognising you when you return to our website and helping our team to understand which sections of the website you find most interesting and useful.