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Useful Resources for Haemoglobinopathies | Support & Guidance

Discover a wealth of useful resources tailored to patients, families, caregivers and support networks whose life is touched by Sickle Cell Disorder (SCD). This page provides a curated collection of tools, guides, and links to external organisations, designed to help those with SCD live your life.  Here we aim to provide holistic information to treat the whole person; financial, nutrition, exercise and social support for everyday life, empowering you to live your best life.

Young Minds | Mental Health Charity For Children And Young People

The Mix Essential support for under 25s in the UK

How a Sickle Crisis Presents

Living with Sickle Cell Disorder | UNHEARD

Establishing a foundation for good nutritional status

Managing common nutritional problems

Patient Public Voice (PPV) Group Application form

Hip exercises for teenagers and adults living with sickle cell disorder

Managing energy levels

John James OBE, Sickle Cell Society

Being Heard – Haemoglobinopathy Coordinating Centre

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