Useful Resources for Haemoglobinopathies | Support & Guidance

Discover a wealth of useful resources tailored to patients, families, caregivers and support networks whose life is touched by Sickle Cell Disorder (SCD). This page provides a curated collection of tools, guides, and links to external organisations, designed to help those with SCD live your life. Here we aim to provide holistic information to treat the whole person; financial, nutrition, exercise and social support for everyday life, empowering you to live your best life.

The RHO Transition Project

Exercise advice for teenagers and adults living with sickle cell disorder

Blood donors are my angels

Thalassaemia & Rare Inherited Anaemias

Being Heard – Haemoglobinopathy Coordinating Centre

Importance of blood donation

Staying active with Sickle Cell Disorder: General advice for children, young people, and families

Help for Children and Young Person’s with Sickle Cell Disorder

Priapism and what to do if you experience it

Physical activity advice for young children living with sickle cell disorder

What to do in a crisis or when you’re in hospital Advice for teenagers and adults living with sickle cell disorder

Upper limb exercises for teenagers and adults living with sickle cell disorder.