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Useful Resources for Haemoglobinopathies | Support & Guidance

Discover a wealth of useful resources tailored to patients, families, caregivers and support networks whose life is touched by Sickle Cell Disorder (SCD). This page provides a curated collection of tools, guides, and links to external organisations, designed to help those with SCD live your life.  Here we aim to provide holistic information to treat the whole person; financial, nutrition, exercise and social support for everyday life, empowering you to live your best life.

Managing energy levels

Physical activity advice for young people and teenagers living with sickle cell disorder

Priapism and what to do if you experience it

Hip exercises for teenagers and adults living with sickle cell disorder

Living with Sickle Cell Disorder | UNHEARD

The RHO Transition Project

Knee exercises for teenagers and adults living with sickle cell disorder

Ready Steady Go – Transition: moving into adult care

How a Sickle Crisis Presents

Young Minds | Mental Health Charity For Children And Young People