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Useful Resources for Haemoglobinopathies | Support & Guidance

Discover a wealth of useful resources tailored to patients, families, caregivers and support networks whose life is touched by Sickle Cell Disorder (SCD). This page provides a curated collection of tools, guides, and links to external organisations, designed to help those with SCD live your life.  Here we aim to provide holistic information to treat the whole person; financial, nutrition, exercise and social support for everyday life, empowering you to live your best life.

Childline | Free counselling service for kids and young people

Annual Report September 2025

What to do in a crisis or when you’re in hospital Advice for teenagers and adults living with sickle cell disorder

The RHO Transition Project Blog

Managing common nutritional problems

Living with Sickle Cell Disorder | UNHEARD

Physical development advice for babies living with sickle cell disorder

Priapism and what to do if you experience it

Young Minds | Mental Health Charity For Children And Young People

Upper limb exercises for teenagers and adults living with sickle cell disorder.

Staying active with Sickle Cell Disorder: General advice for children, young people, and families

John James OBE, Sickle Cell Society

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