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Useful Resources for Haemoglobinopathies | Support & Guidance

Discover a wealth of useful resources tailored to patients, families, caregivers and support networks whose life is touched by Sickle Cell Disorder (SCD). This page provides a curated collection of tools, guides, and links to external organisations, designed to help those with SCD live your life.  Here we aim to provide holistic information to treat the whole person; financial, nutrition, exercise and social support for everyday life, empowering you to live your best life.

Physical development advice for babies living with sickle cell disorder

Knee exercises for teenagers and adults living with sickle cell disorder

Thalassaemia & Rare Inherited Anaemias

How a Sickle Crisis Presents

Annual Report September 2025

Ready Steady Go – Transition: moving into adult care

Managing energy levels

Hip exercises for teenagers and adults living with sickle cell disorder

Physical activity advice for young children living with sickle cell disorder

What to do in a crisis or when you’re in hospital Advice for teenagers and adults living with sickle cell disorder

Young Minds | Mental Health Charity For Children And Young People