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Useful Resources for Haemoglobinopathies | Support & Guidance

Discover a wealth of useful resources tailored to patients, families, caregivers and support networks whose life is touched by Sickle Cell Disorder (SCD). This page provides a curated collection of tools, guides, and links to external organisations, designed to help those with SCD live your life.  Here we aim to provide holistic information to treat the whole person; financial, nutrition, exercise and social support for everyday life, empowering you to live your best life.

Core (trunk) exercises for teenagers and adults living with sickle cell disorder

Physical activity advice for young people and teenagers living with sickle cell disorder

Hip exercises for teenagers and adults living with sickle cell disorder

Annual Report September 2025

Therapeutic apheresis treatments

Sickle Cell: Supporting Children and young people at School

Help for Children and Young Person’s with Sickle Cell Disorder

Establishing a foundation for good nutritional status

Managing energy levels

John James OBE, Sickle Cell Society

Thalassaemia & Rare Inherited Anaemias

Kooth – the mental health and wellbeing platform for young people 

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