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Useful Resources for Haemoglobinopathies | Support & Guidance

Discover a wealth of useful resources tailored to patients, families, caregivers and support networks whose life is touched by Sickle Cell Disorder (SCD). This page provides a curated collection of tools, guides, and links to external organisations, designed to help those with SCD live your life.  Here we aim to provide holistic information to treat the whole person; financial, nutrition, exercise and social support for everyday life, empowering you to live your best life.

Importance of blood donation

What is was like for me growing up with SCD

Priapism and what to do if you experience it

How a Sickle Crisis Presents

Patient Public Voice (PPV) Group Application form

Thalassaemia & Rare Inherited Anaemias

Managing Pain

How to manage malnutrition risks in children living with sickle cell disorder

Managing energy levels

Being Heard

Living with Sickle Cell Disease | UNHEARD

Terminology

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The North East and Yorkshire Haemoglobinopathy Coordination Centre

Providing expert care and support for individuals with blood disorders. Find resources, information, and support services across the North East and Yorkshire region.

Sheffield Teaching Hospitals
Sheffield Children's Hospital
Leeds Teaching Hospital
Newcastle and Tyne Hospital
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