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Useful Resources for Haemoglobinopathies | Support & Guidance

Discover a wealth of useful resources tailored to patients, families, caregivers and support networks whose life is touched by Sickle Cell Disorder (SCD). This page provides a curated collection of tools, guides, and links to external organisations, designed to help those with SCD live your life.  Here we aim to provide holistic information to treat the whole person; financial, nutrition, exercise and social support for everyday life, empowering you to live your best life.

Managing common nutritional problems

John James OBE, Sickle Cell Society

Upper limb exercises for teenagers and adults living with sickle cell disorder

Priapism and what to do if you experience it

Living with Sickle Cell Disorder | UNHEARD

Knee exercises for teenagers and adults living with sickle cell disorder

Annual Report September 2025

Establishing a foundation for good nutritional status

Managing energy levels

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