Useful Resources for Haemoglobinopathies | Support & Guidance

Discover a wealth of useful resources tailored to patients, families, caregivers and support networks whose life is touched by Sickle Cell Disorder (SCD). This page provides a curated collection of tools, guides, and links to external organisations, designed to help those with SCD live your life. Here we aim to provide holistic information to treat the whole person; financial, nutrition, exercise and social support for everyday life, empowering you to live your best life.

Patient Public Voice (PPV) Group Application form

The Sickle Cell Nutrition Eatwell Guide – A foundation to support healthy eating

Upper limb exercises for teenagers and adults living with sickle cell disorder.

Help for Children and Young Person’s with Sickle Cell Disorder

Thalassaemia & Rare Inherited Anaemias

Ready Steady Go – Transition: moving into adult care

Physical development advice for babies living with sickle cell disorder

Kooth – the mental health and wellbeing platform for young people

Exercise advice for teenagers and adults living with sickle cell disorder

Being Heard – Haemoglobinopathy Coordinating Centre

Physical activity advice for young people and teenagers living with sickle cell disorder

Core (trunk) exercises for teenagers and adults living with sickle cell disorder