Thalassaemia & Rare Inherited Anaemias
The NE & Y HCC is a network for SCD only. The hospitals and clinical teams are part of the North Egland Thalassaemia & RIA HCC – North of England Haemoglobinopathy Coordinating Centre What is Thalassaemia? Thalassaemia is a genetic blood disorders affecting the production of haemoglobin. People with thalassaemia produce either no or too little haemoglobin. Haemoglobin is an iron-rich protein […]
Blood donors are my angels
https://www.bbc.co.uk/sounds/play/p0f36xw9
Living with Sickle Cell Disease | UNHEARD
Priapism and what to do if you experience it
The Sickle Cell Society have released a useful video on Priapism and what to do if you experience it. To watch the video and for further information, please visit A Simple Guide to Priapism. https://www.sicklecellsociety.org/priapism/
Managing Pain
How a Sickle Crisis Presents
Patient Public Voice (PPV) Group Application form
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Being Heard
Terminology
Abbreviation Full Term Details BMT Bone Marrow Transplant Bone marrow transplant, also known as ‘stem cell transplant’ or ‘haematopoietic stem cell transplant’, can offer a potential cure for Sickle Cell Disorder (SCD). It involves replacing a patient’s bone marrow cells with healthy stem cells from a donor. This transplant can only be considered for those […]
Managing common nutritional problems
