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Useful Resources for Haemoglobinopathies | Support & Guidance

Discover a wealth of useful resources tailored to patients, families, caregivers and support networks whose life is touched by Sickle Cell Disorder (SCD). This page provides a curated collection of tools, guides, and links to external organisations, designed to help those with SCD live your life.  Here we aim to provide holistic information to treat the whole person; financial, nutrition, exercise and social support for everyday life, empowering you to live your best life.

Priapism and what to do if you experience it

The Sickle Cell Nutrition Eatwell Guide – A foundation to support healthy eating

Managing Pain

What is was like for me growing up with SCD

Blood donors are my angels

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The North East and Yorkshire Haemoglobinopathy Coordination Centre

Providing expert care and support for individuals with blood disorders. Find resources, information, and support services across the North East and Yorkshire region.

Sheffield Teaching Hospitals
Sheffield Children's Hospital
Leeds Teaching Hospital
Newcastle and Tyne Hospital
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