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Useful Resources for Haemoglobinopathies | Support & Guidance

Discover a wealth of useful resources tailored to patients, families, caregivers and support networks whose life is touched by Sickle Cell Disorder (SCD). This page provides a curated collection of tools, guides, and links to external organisations, designed to help those with SCD live your life.  Here we aim to provide holistic information to treat the whole person; financial, nutrition, exercise and social support for everyday life, empowering you to live your best life.

What is was like for me growing up with SCD

Thalassaemia & Rare Inherited Anaemias

Blood donors are my angels

Establishing a foundation for good nutritional status

How to manage malnutrition risks in children living with sickle cell disorder

Managing energy levels

The Sickle Cell Nutrition Eatwell Guide – A foundation to support healthy eating

Living with Sickle Cell Disease | UNHEARD

Managing common nutritional problems

How a Sickle Crisis Presents

Managing Pain

Terminology

Reversed Logo

The North East and Yorkshire Haemoglobinopathy Coordination Centre

Providing expert care and support for individuals with blood disorders. Find resources, information, and support services across the North East and Yorkshire region.

Sheffield Teaching Hospitals
Sheffield Children's Hospital
Leeds Teaching Hospital
Newcastle and Tyne Hospital
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