John James OBE, Sickle Cell Society
John James OBE briefly explains the Sickle Cell Society’s mission and stresses the need for better awareness, consistent specialist care, and stronger support for people living with sickle cell disorders.
Thalassaemia & Rare Inherited Anaemias
The NE & Y HCC is a network for SCD only. The hospitals and clinical teams are part of the North Egland Thalassaemia & RIA HCC – North of England Haemoglobinopathy […]
Blood donors are my angels
This powerful video, “Blood Donors Are My Angels,” highlights the vital role of regular blood donation in the lives of people living with Sickle Cell Disorder. It shares heartfelt experiences […]
Living with Sickle Cell Disorder | UNHEARD
This video, Living with Sickle Cell Disease | UNHEARD, shares personal experiences of people living with sickle cell disease and highlights the physical, emotional, and social challenges they face every […]
Priapism and what to do if you experience it
Priapism Some boys with sickle cell can get a painful swelling of the penis. This is called priapism. It can sometimes get better on its own, and things like drinking […]
Managing Pain
This video shares powerful personal stories about living with sickle cell and offers practical insight into managing pain. It highlights real experiences, explores common challenges, and provides supportive guidance on […]
How a Sickle Crisis Presents
The video on how a sickle crisis presents explains the typical signs and symptoms of a sickle cell pain crisis, showing how it can begin suddenly, escalate quickly, and require […]
Patient Public Voice (PPV) Group Application form
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Being Heard – Haemoglobinopathy Coordinating Centre
This video highlights the importance of listening to the voices and experiences of people living with haemoglobin disorders. It focuses on patient stories, support services, and how the HCC is […]
Terminology
Abbreviation Full Term Details BMT Bone Marrow Transplant Bone marrow transplant, also known as ‘stem cell transplant’ or ‘haematopoietic stem cell transplant’, can offer a potential cure for Sickle Cell […]