What is was like for me growing up with SCD
This video shares a personal reflection on growing up with sickle cell disorder, highlighting the challenges, experiences, and resilience involved from childhood through adolescence. It explores topics such as managing […]
Importance of blood donation
Blood donation is vital for people living with sickle cell, as many rely on regular blood transfusions to prevent serious complications and manage their condition safely. Donated blood helps increase […]
John James OBE, Sickle Cell Society
John James OBE briefly explains the Sickle Cell Society’s mission and stresses the need for better awareness, consistent specialist care, and stronger support for people living with sickle cell disorders.
What is Sickle Cell?
Sickle cell disorder (SCD) is a genetically inherited red blood cell disorder. That means it is passed down from a parent’s genes. SCD changes the shape of red blood cells, […]
Thalassaemia & Rare Inherited Anaemias
The NE & Y HCC is a network for SCD only. The hospitals and clinical teams are part of the North Egland Thalassaemia & RIA HCC – North of England Haemoglobinopathy […]
Citizen’s Advice
Benefits What benefits can I claim? There are a number of different benefits checking services available which can help you to explore your benefit entitlement: ● https://www.entitledto.co.uk/ ● https://www.turn2us.org.uk/ Can […]
FLORAL
Long-term treatment with etavopivat in people with sickle cell disorder or thalassaemia Click here
Blood donors are my angels
This powerful video, “Blood Donors Are My Angels,” highlights the vital role of regular blood donation in the lives of people living with Sickle Cell Disorder. It shares heartfelt experiences […]
Living with Sickle Cell Disorder | UNHEARD
This video, Living with Sickle Cell Disease | UNHEARD, shares personal experiences of people living with sickle cell disease and highlights the physical, emotional, and social challenges they face every […]
Priapism and what to do if you experience it
The Sickle Cell Society have released a useful video on Priapism and what to do if you experience it. To watch the video and for further information, please visit A […]