Deborah Ajibola
Deborah Ajibola is a passionate Sickle cell warrior and advocate, diagnosed with Sickle cell disorder (HbSS) at the age of five. Her personal journey has fuelled a deep commitment to […]
Solome Nanziri
Solome is a sickle cell patient, and it affects her everyday of her life. As a result, she takes each day of her life as it comes, after all, life […]
Busonma Edo
Busonma Edo is a distinguished legal and healthcare professional whose work bridges the fields of law, advocacy, and patient-centred care. With a proven record of leadership in complex care management […]
Chris NG
I am a consultant paediatric radiologist based in Sheffield Children’s Hospital. I am keen to support the consistent delivery of quality transcranial doppler screening in the North East and Yorkshire […]
Annual Report September 2025
How exercise supported my Sickle Cell journey
Living with Sickle Cell Disorder is an inspiring video featuring Dunstan Nicol‑Wilson and Nkechi Adeniyi, who share their personal experiences of living with SCD and what exercise looks like in […]
What to do in a crisis or when you’re in hospital Advice for teenagers and adults living with sickle cell disorder
This video explains how painful crises can affect people with sickle cell disorder and introduces the incentive spirometer as a tool to support breathing during these episodes. It demonstrates how […]
Exercise advice for teenagers and adults living with sickle cell disorder
This video explains the benefits of regular exercise for people living with sickle cell disorder and offers practical guidance on how to stay active safely. It covers suitable types of […]
Knee exercises for teenagers and adults living with sickle cell disorder
This video showcases four knee‑focused exercises to help build strength, stability, and confidence with everyday activities such as walking and climbing stairs. The programme is suitable for older teenagers and […]
Core (trunk) exercises for teenagers and adults living with sickle cell disorder
Core (trunk) exercises can be helpful for teenagers and adults living with sickle cell disorder by supporting posture, balance, and everyday movement. Strengthening the core muscles can improve stability, reduce […]