Date: Saturday, 21st June 2025
Location: Sheffield Hallam University
The Regional Sickle Cell Disorder (SCD) Patient Event brought together patients, families, carers, and healthcare professionals to share knowledge, experiences, and advancements in SCD care. The event featured presentations from leading experts and advocates in the field, covering a wide range of topics relevant to both young people and adults living with SCD.
Speakers and Sessions, event summary
North-East & Yorkshire HCC Patient Event June 2025
NE & Y HCC Patient Event Presentation Master Adult
NE & Y HCC Patient Event Presentation Young Persons
- John James OBE – Chief Executive of the Sickle Cell Society
- Dr Mike Richards – Associate Medical Director Children’s Services and Consultant Paediatric Haematologist
- Hekima Asilia – Thicker Than Water
- Tony Watson – Mindfulness
- Dr Emma Astwood – Paediatric Haematologist, Sheffield Children’s Hospital: What Is Sickle Cell Disease? A Life of Pain, Resilience, and a Plea to Be Heard
- Oluwabukola Akanni – Growing up with SCD
- Dr Claudine Matthews DPROF HSC RD FHEA – Your Diet and Health
- Jenni Lawrence – Children & Young People’s Haemoglobinopathy Clinical Nurse Specialist, Great North Children’s Hospital: Growing up with Sickle – What Every Girl Should Know
- Cheryl Hall, Polly Crookes, Carly Bell – Haematology Nurse Specialists, Sheffield Children’s Hospital: Transition
- NE&Y HCC Network Patient Representatives – Chair: Blessing Olasolomon, Dept. Chairs: Elizabeth Okokwa, Christobel Iwoba, Johnson Ochai
- Dr Étienne Ciantar MD, FRCOG, FHEA – Consultant in Obstetrics, Obstetric Haematology & Medical Education, Leeds Teaching Hospitals NHS Trust: Fertility and Pregnancy
- Dr Claudine Matthews DPROF HSC RD FHEA – Healthy Eating Principles to Improve Health Outcomes
- Dr Clare Samuelson – New Treatments in Sickle Cell Disorder
