John James OBE, Sickle Cell Society
What is Sickle Cell?
Sickle cell disorder (SCD) is a genetically inherited red blood cell disorder. That means it is passed down from a parent’s genes. SCD changes the shape of red blood cells, […]
Thalassaemia & Rare Inherited Anaemias
The NE & Y HCC is a network for SCD only. The hospitals and clinical teams are part of the North Egland Thalassaemia & RIA HCC – North of England Haemoglobinopathy […]
Citizen’s Advice
Benefits What benefits can I claim? There are a number of different benefits checking services available which can help you to explore your benefit entitlement: ● https://www.entitledto.co.uk/ ● https://www.turn2us.org.uk/ Can […]
FLORAL
Long-term treatment with etavopivat in people with sickle cell disorder or thalassaemia Click here
Blood donors are my angels
https://www.bbc.co.uk/sounds/play/p0f36xw9
Living with Sickle Cell Disorder | UNHEARD
Priapism and what to do if you experience it
The Sickle Cell Society have released a useful video on Priapism and what to do if you experience it. To watch the video and for further information, please visit A […]
Managing Pain
This video shares powerful personal stories about living with sickle cell and offers practical insight into managing pain. It highlights real experiences, explores common challenges, and provides supportive guidance on […]
How a Sickle Crisis Presents
