What is Sickle Cell?
Sickle cell disorder (SCD) is a genetically inherited red blood cell disorder. That means it is passed down from a parent’s genes. SCD changes the shape of red blood cells, from a healthy round shape to the cell taking on a crescent or sickle shape. It is a lifelong blood disorder. Haemoglobin is the protein […]
Thalassaemia & Rare Inherited Anaemias
The NE & Y HCC is a network for SCD only. The hospitals and clinical teams are part of the North Egland Thalassaemia & RIA HCC – North of England Haemoglobinopathy Coordinating Centre What is Thalassaemia? Thalassaemia is a genetic blood disorders affecting the production of haemoglobin. People with thalassaemia produce either no or too little haemoglobin. Haemoglobin is an iron-rich protein […]
Citizen’s Advice
Benefits What benefits can I claim? There are a number of different benefits checking services available which can help you to explore your benefit entitlement: ● https://www.entitledto.co.uk/ ● https://www.turn2us.org.uk/ Can I get Personal Independence Payment (PIP) because I have sickle cell disease? PIP is a benefit for people who have long term health conditions like […]
FLORAL
Long-term treatment with etavopivat in people with sickle cell disease or thalassaemia https://www.hra.nhs.uk/planning-and-improving-research/application-summaries/research-summaries/7822-floral-long-term-treatment-with-etavopivat-in-people-with-sickle-cell-disease-or-thalassaemia/
Blood donors are my angels
https://www.bbc.co.uk/sounds/play/p0f36xw9
Living with Sickle Cell Disease | UNHEARD
Priapism and what to do if you experience it
The Sickle Cell Society have released a useful video on Priapism and what to do if you experience it. To watch the video and for further information, please visit A Simple Guide to Priapism. https://www.sicklecellsociety.org/priapism/
Managing Pain
How a Sickle Crisis Presents
Patient Public Voice (PPV) Group Application form
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