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Help and Support for Living with Sickle Cell

Sickle Cell Disorder affects people differently. Day-to-day life could be affected because of debilitating acute pain, fatigue and frequent hospitalisations. The North East and Yorkshire Haemoglobinopathy Coordination Centre hopes to provide tools to help manage those with a diagnosis as well as inform support networks and wider society. On this page, you’ll find a wealth of resources, information, and connections to support groups.

Useful Resources

Collection of helpful tools, guides, and links to external organisations. Access practical resources to support your daily life and manage your condition effectively.

Patient Information & Guidance

Coming soon – Patient leaflets providing information for those affected by Sickle Cell Disorder

Events & Dates

Stay connected with upcoming events, workshops, and support group meetings. Join our community and connect with others who understand and share similar experiences.

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