The role of patient representatives is to ensure that care is patient-centred with the views and ideas of patients being heard. Peer leaders, a person with lived experience, are committed to working collaboratively with the health and care system to provide leadership and empowerment for strategic co-production, peer support and self-management education.
Our elected Chair and Deputies are listed below.
Busonma Edo is a distinguished legal and healthcare professional whose work bridges the fields of law, advocacy, and patient-centred care. With a proven record of leadership in complex care management
Solome is a sickle cell patient, and it affects her everyday of her life. As a result, she takes each day of her life as it comes, after all, life
Deborah Ajibola is a passionate Sickle cell warrior and advocate, diagnosed with Sickle cell disorder (HbSS) at the age of five. Her personal journey has fuelled a deep commitment to
Hello, as a newly appointed deputy, I am excited and honoured to be part of something so needed and meaningful. I hope to bring knowledge, ideas, understanding and empathy to
The North East and Yorkshire Haemoglobinopathy Coordinating Centre (N E & Y HCC) for Sickle Cell aims to provide high-standard and equal care across the region. We value the role of patient representatives who can bring a unique perspective to decision making. As you are an expert by experience, we believe your experiences can be utilised to engage in meaningful discussions to shape the services and systems which provide your healthcare.
The group meets monthly online (Teams) for an hour. If you are impacted by SCD and live in our region and would like to join our group, please email Emma Pullia or Zoë Hunter [email protected]
Click here and fill out the application form >
