The role of patient representatives is to ensure that care is patient-centred with the views and ideas of patients being heard. Peer leaders, a person with lived experience, are committed to working collaboratively with the health and care system to provide leadership and empowerment for strategic co-production, peer support and self-management education.
Our elected Chair and Deputies are listed below.
The North East and Yorkshire Haemoglobinopathy Coordinating Centre (N E & Y HCC) for Sickle Cell aims to provide high-standard and equal care across the region. We value the role of patient representatives who can bring a unique perspective to decision making. As you are an expert by experience, we believe your experiences can be utilised to engage in meaningful discussions to shape the services and systems which provide your healthcare.
The group meets monthly online (Teams) for an hour. If you are impacted by SCD and live in our region and would like to join our group, please email Emma Pullia or Zoë Hunter [email protected]
Click here and fill out the application form >
The North East and Yorkshire Haemoglobinopathy Coordination Centre
Providing expert care and support for individuals with blood disorders. Find resources, information, and support services across the North East and Yorkshire region.
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