Managing Common Nutritional Problems: Expert Advice & Practical Strategies
Managing Common Nutritional Problems: Expert Advice & Practical Strategies Who is this for? Adults experiencing unintended weight loss Older people with reduced appetite Individuals recovering from illness People undergoing cancer […]
Pain Management for Adults Living with Sickle Cell Disorder
Information for Patients, Family and Carers
Management of Acute Painful Crisis and Chronic Pain in Adults with Sickle Cell Disorder
Contents Assessment and Investigation of a Sickle Cell Crisis Management of a Sickle Cell Painful Crisis Reassessment and On-going Management Supportive care measures Discharge Patient Education and Self-Management Opioid Dependence […]
Help for Children and Young Person’s with Sickle Cell Disorder

These videos are designed for young people to help them understand Sickle Cell Disease in a simple and engaging way. They explain what the condition is, how it affects the […]
PPV Chair and Deputy Chair
Charelle Smith-Asipa
Hello, as a newly appointed deputy, I am excited and honoured to be part of something so needed and meaningful. I hope to bring knowledge, ideas, understanding and empathy to […]
Deborah Ajibola
Deborah Ajibola is a passionate Sickle cell warrior and advocate, diagnosed with Sickle cell disorder (HbSS) at the age of five. Her personal journey has fuelled a deep commitment to […]
Solome Nanziri

Solome is a sickle cell patient, and it affects her everyday of her life. As a result, she takes each day of her life as it comes, after all, life […]
Busonma Edo

Busonma Edo is a distinguished legal and healthcare professional whose work bridges the fields of law, advocacy, and patient-centred care. With a proven record of leadership in complex care management […]
Chris NG

I am a consultant paediatric radiologist based in Sheffield Children’s Hospital. I am keen to support the consistent delivery of quality transcranial doppler screening in the North East and Yorkshire […]