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X-ORIGINAL-URL:https://www.ney-hcc.co.uk
X-WR-CALDESC:Events for Haemoglobinopathy Coordinating Centre
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DTSTART;TZID=Europe/London:20260509T103000
DTEND;TZID=Europe/London:20260509T170000
DTSTAMP:20260526T072133
CREATED:20260325T140542Z
LAST-MODIFIED:20260325T164933Z
UID:2509-1778322600-1778346000@www.ney-hcc.co.uk
SUMMARY:Space to Breathe
DESCRIPTION:Space to Breathe exist to create conversations around mental health and wellbeing through the creative arts\, non-religious spirituality\, yoga and positive psychology. We then work with the NHS\, organisations\, charities\, businesses\, communities and individuals to create tailored and contextual responses and projects aimed at enabling everyone to live as healthily as possible.
URL:https://www.ney-hcc.co.uk/event/space-to-breathe/
LOCATION:Scotia Works
ATTACH;FMTTYPE=image/jpeg:https://www.ney-hcc.co.uk/wp-content/uploads/2026/03/image-3.jpeg
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260327T133000
DTEND;TZID=Europe/London:20260327T170000
DTSTAMP:20260526T072133
CREATED:20260325T140340Z
LAST-MODIFIED:20260325T140340Z
UID:2506-1774618200-1774630800@www.ney-hcc.co.uk
SUMMARY:Leeds teaching hospital patient event!
DESCRIPTION:Dear Patients\, \nThe Red Cell Team at Leeds teaching hospitals warmly invites you to a special Patient Lunch at Shine\, Harehills. \nJoin us for a relaxed and friendly afternoon with a delicious meal\, where you can meet other patients\, share experiences\, and enjoy time together in a welcoming environment.
URL:https://www.ney-hcc.co.uk/event/leeds-teaching-hospital-patient-event/
LOCATION:Shine\, Harehills Road\, Leeds\, LS8 5HS\, Shine\, Harehills Road\, Leeds\, LS8 5HS\, United Kingdom
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DTSTART;TZID=Europe/London:20260327T120000
DTEND;TZID=Europe/London:20260327T140000
DTSTAMP:20260526T072133
CREATED:20260115T151343Z
LAST-MODIFIED:20260115T152638Z
UID:2331-1774612800-1774620000@www.ney-hcc.co.uk
SUMMARY:Treehouse Games Cafe
DESCRIPTION:This café is a friendly board game café in Sheffield where you can relax\, enjoy food and drink\, and play from a huge library of more that 800 board games with other in a welcoming space. \nIf you require somebody to attend with you\, please contact the haemoglobinopathy team who will be happy to assist in obtaining an extra ticket. To book a space on one of the events please follow the link or use the QR code which will take you to Eventbrite where you can book one or more of the events. You will be asked to provide the password which is at the bottom of the page. \npassword: Sunshine (Case sensitive) \nBook Now
URL:https://www.ney-hcc.co.uk/event/treehouse-games-cafe-2/
ATTACH;FMTTYPE=image/jpeg:https://www.ney-hcc.co.uk/wp-content/uploads/2026/01/Tree-House-Event.jpeg
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DTSTART;TZID=Europe/London:20260131T120000
DTEND;TZID=Europe/London:20260131T140000
DTSTAMP:20260526T072133
CREATED:20260115T151201Z
LAST-MODIFIED:20260115T152658Z
UID:2327-1769860800-1769868000@www.ney-hcc.co.uk
SUMMARY:Treehouse Games Cafe
DESCRIPTION:This café is a friendly board game café in Sheffield where you can relax\, enjoy food and drink\, and play from a huge library of more that 800 board games with other in a welcoming space. \nIf you require somebody to attend with you\, please contact the haemoglobinopathy team who will be happy to assist in obtaining an extra ticket. To book a space on one of the events please follow the link or use the QR code which will take you to Eventbrite where you can book one or more of the events. You will be asked to provide the password which is at the bottom of the page. \npassword: Sunshine (Case sensitive) \nBook Now
URL:https://www.ney-hcc.co.uk/event/treehouse-games-cafe/
ATTACH;FMTTYPE=image/jpeg:https://www.ney-hcc.co.uk/wp-content/uploads/2026/01/Tree-House-Event.jpeg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250621
DTEND;VALUE=DATE:20250622
DTSTAMP:20260526T072133
CREATED:20250917T105504Z
LAST-MODIFIED:20251003T075311Z
UID:2052-1750464000-1750550399@www.ney-hcc.co.uk
SUMMARY:Apply Now! 2025 Sickle Cell Family Retreat
DESCRIPTION:Applications are open and filling up fast for our 2025 family retreat. It will take place at Whitemoor Lakes\, 30 minutes from Birmingham\, on 29th to 31st August.NE & Y HCC Patient Event Presentation Young Persons Master \n\n\n\nIt’s open to families from the UK who have a child aged 6-15 years old with sickle cell and we invite the immediate family to attend\, including siblings aged under 18 \n\n\n\nThe retreat will be a holistic weekend full of education\, adventures\, learning and fun. We would love for you to join us ! \n\n\n\nSupported by a team of enthusiastic volunteers and experienced Sickle Cell Society staff members\, your family will embark on a programme which includes educational seminars\, adventure activities such as climbing\, zipwire and archery\, peer-to-peer support\, relaxation-based activities – and\, of course\, a Saturday evening disco and Friday night stories around the campfire! All of this will be delivered in a medically safe environment which has been specifically designed with children with sickle cell in mind. \n\n\n\nThe retreat is free to attend if your family is selected\, but you’ll need to make your own way there. Applications are still open\, but will close in the next few weeks\, so make sure you don’t miss the chance for your family to take part: Apply Now  \n\n\n\nHere’s some of the feedback from the 2024 retreat : \n\n\n\n“I’d like to express how meaningful the Sickle Cell Family Retreat was for my family. It provided essential support\, reinforced the importance of community\, and offered valuable insights into managing sickle cell anaemia. \n\n\n\nThe connections made were invaluable\, and the retreat contributed to my son’s confidence and understanding. The high level of organisation and thoughtfulness in every aspect of the retreat made it a truly enriching experience.” \n\n\n\n– Parent\, Family Retreat 2024- \n\n\n\n“My son was so happy to meet other children his age with the same condition as him\, he has felt isolated in the past with his condition. The activities were great\, he came back with more knowledge of his condition. \n\n\n\nHonestly a great weekend” \n\n\n\n– Parent\, Family Retreat 2024- \n\n\n\nApply now : Sickle Cell Family Retreat 2025 Application  \n\n\n\n\nBook Now \n\n\n\n\n\nEnquiries
URL:https://www.ney-hcc.co.uk/event/apply-now-2025-sickle-cell-family-retreat/
LOCATION:Royal Hallamshire Hospital\,\, Broomhill\, Glossop Rd\,\, Sheffield\, S10 2JF\, United Kingdom
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250621
DTEND;VALUE=DATE:20250622
DTSTAMP:20260526T072133
CREATED:20250917T105329Z
LAST-MODIFIED:20250925T132055Z
UID:2050-1750464000-1750550399@www.ney-hcc.co.uk
SUMMARY:Regional Sickle Cell Disorder (SCD) Patient Event Summary
DESCRIPTION:  \nDate: Saturday\, 21st June 2025 \nLocation: Sheffield Hallam University \nThe Regional Sickle Cell Disorder (SCD) Patient Event brought together patients\, families\, carers\, and healthcare professionals to share knowledge\, experiences\, and advancements in SCD care. The event featured presentations from leading experts and advocates in the field\, covering a wide range of topics relevant to both young people and adults living with SCD. \nSpeakers and Sessions\, event summary \nNorth-East & Yorkshire HCC Patient Event June 2025 \nNE & Y HCC Patient Event Presentation Master Adult  \nNE & Y HCC Patient Event Presentation Young Persons  \n\nJohn James OBE – Chief Executive of the Sickle Cell Society\nDr Mike Richards – Associate Medical Director Children’s Services and Consultant Paediatric Haematologist\nHekima Asilia – Thicker Than Water\nTony Watson – Mindfulness\nDr Emma Astwood – Paediatric Haematologist\, Sheffield Children’s Hospital: What Is Sickle Cell Disease? A Life of Pain\, Resilience\, and a Plea to Be Heard\nOluwabukola Akanni – Growing up with SCD\nDr Claudine Matthews DPROF HSC RD FHEA – Your Diet and Health\nJenni Lawrence – Children & Young People’s Haemoglobinopathy Clinical Nurse Specialist\, Great North Children’s Hospital: Growing up with Sickle – What Every Girl Should Know\nCheryl Hall\, Polly Crookes\, Carly Bell – Haematology Nurse Specialists\, Sheffield Children’s Hospital: Transition\nNE&Y HCC Network Patient Representatives – Chair: Blessing Olasolomon\, Dept. Chairs: Elizabeth Okokwa\, Christobel Iwoba\, Johnson Ochai\nDr Étienne Ciantar MD\, FRCOG\, FHEA – Consultant in Obstetrics\, Obstetric Haematology & Medical Education\, Leeds Teaching Hospitals NHS Trust: Fertility and Pregnancy\nDr Claudine Matthews DPROF HSC RD FHEA – Healthy Eating Principles to Improve Health Outcomes\nDr Clare Samuelson – New Treatments in Sickle Cell Disorder\n\n 
URL:https://www.ney-hcc.co.uk/event/free-regional-sickle-cell-disorder-scd-patient-event/
LOCATION:Royal Hallamshire Hospital\,\, Broomhill\, Glossop Rd\,\, Sheffield\, S10 2JF\, United Kingdom
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